Hla mus rau cov ntsiab lus

Kev kho mob & kev tswj xyuas

Tus kws saib xyuas neeg mob EB tham nrog tus neeg mob ntawm ib qho ntawm EB cov chaw ua haujlwm zoo.

Kev tu tawv nqaij thiab qhov txhab rau EB: Cov lus qhia thiab cov peev txheej

Cov lus qhia thiab cov peev txheej rau kev tswj xyuas qhov txhab rau EB, xws li yuav ua li cas kho cov hlwv thiab tswj qhov mob.
Xav paub ntau ntxiv
Ib tug neeg nrog EB tau hloov lawv cov khaub ncaws los ntawm tus neeg saib xyuas.

Mob thiab khaus khaus rau cov neeg mob EB

Kev taw qhia txog kev tswj khaus khaus thiab EB mob nyem, pab kom pw tsaug zog zoo dua, cov ntaub ntawv ntawm peb cov nyiaj pab txhawb nqa, thiab lwm yam.
Xav paub ntau ntxiv
Kev npaj ntawm daim ntawv txiav tawm zoo li ko taw, sau nrog cov lus qhia los ntawm cov tswv cuab nyob nrog EB.

EB saib xyuas ko taw: podiatry cov lus qhia thiab cov lus qhia

Podiatry cov lus qhia rau cov neeg uas muaj EB, suav nrog cov peev txheej txhawb nqa, cov lus qhia siv tau rau kev saib xyuas ko taw thiab kev noj qab haus huv, thiab cov lus qhia los ntawm peb cov tswv cuab.
Xav paub ntau ntxiv
Tus poj niam cev xeeb tub nrog nws tus khub.

Tswj kev xeeb tub thiab yug menyuam nrog EB

Cov ntaub ntawv thiab cov peev txheej los pab koj tswj kev xeeb tub, yug menyuam, thiab niam txiv nrog EB.
Xav paub ntau ntxiv
Ib tug neeg siv ib tug agility ntaiv rau hauv pem teb, nrog ib tug ko taw lifted. Lub pob ruaj khov thiab cov cuab yeej ua haujlwm tau pom nyob hauv keeb kwm yav dhau.

Physiotherapy rau EB

Txheej txheem cej luam ntawm physiotherapy cov lus qhia thiab cov lus pom zoo rau cov neeg nyob nrog EB.
Xav paub ntau ntxiv
Silhouette ntawm ib tug neeg zaum ntawm ntug ntawm ib tug qauv, overlooking toj roob hauv pes thaum hnub poob.

Kev xav zoo

Cov lus qhia, cov ntaub ntawv thiab cov peev txheej los pab txhawb kev noj qab haus huv rau lub zej zog EB.
Xav paub ntau ntxiv
Tus neeg tsaug zog lub taub hau ntawm caj npab ntawm lub rooj nrog lub laptop, phau ntawv, thiab lub notepad.

Tswj kev pw tsaug zog thiab qaug zog nrog epidermolysis bullosa

Kawm paub tias epidermolysis bullosa (EB) cuam tshuam li cas rau kev pw tsaug zog thiab qaug zog, thiab koj tuaj yeem tswj nws li cas nrog cov lus qhia rau cov neeg muaj EB.
Xav paub ntau ntxiv
Tus kws kho hniav hauv lub tsho xiav tham nrog nws tus neeg mob.

Kev saib xyuas EB: qhov muag, kho hniav, phais thiab kev txhawb nqa qog noj ntshav

Ib qho kev nthuav dav ntawm kev nkag mus rau qhov tshwj xeeb epidermolysis bullosa (EB) kev kho mob rau kev kho qhov muag, kho hniav, phais, thiab kev tswj mob qog noj ntshav.
Xav paub ntau ntxiv