DEBRA UK cov koom txoos
Peb paub tias nws tseem ceeb npaum li cas rau cov tswv cuab ntawm EB zej zog kom muaj peev xwm sib txuas lus, sib qhia cov kev paub thiab cov lus qhia, tsim kev phooj ywg, thiab muaj kev lom zem, txhua yam tsis tas yuav piav qhia tias EB yog dab tsi.
Qhov no yog vim li cas peb thiaj li tau tsim ib qho kev pab cuam ntawm lub teb chaws, cheeb tsam thiab hauv online txheej xwm kom EB zej zog tuaj yeem sib txuas hauv zos thiab ua kev sib txuas tseem ceeb nrog cov tswv cuab hauv lwm qhov hauv lub tebchaws.
Peb cov xwm txheej kuj tsim lub sijhawm rau cov tswv cuab los txuas nrog cov DEBRA EB Community Support Team thiab hnov los ntawm cov kws tshaj lij hauv kev kho mob EB.
Sib nrug ntawm peb cov xwm txheej tshwj xeeb rau cov tswv cuab, qee zaum peb kuj tau txais qee qhov tsawg daim pib pub dawb rau cov tswv cuab tuaj koom qee qhov ntawm DEBRA qhov kev nrhiav nyiaj txiag loj.
Tshawb xyuas peb daim ntawv teev npe tag nrho ntawm cov koom txoos cov xwm txheej
Peb ib txwm npaj peb cov xwm txheej raws li peb cov tswv cuab xav tau thiab xav tau. Yog li, yog tias muaj qee yam koj xav pom ntau dua lossis tsawg dua, lossis yog tias koj muaj lub tswv yim rau qhov xwm txheej tshiab, peb xav hnov koj cov lus qhia los ntawm sau daim foos no.
