Lub website no siv cov ncuav qab zib kom peb thiaj li muab tau rau koj nrog tus neeg siv tau zoo tshaj plaws. Cov lus qhia hauv qab zib yog cia rau hauv koj tus browser thiab ua haujlwm xws li lees paub koj thaum koj rov qab mus rau peb lub vev xaib thiab pab peb pawg neeg kom nkag siab txog cov chaw hauv lub website koj pom ntau yam ntxim nyiam thiab siv tau.
Cov peev txheej rau cov kws kho mob
Nplooj ntawv no suav nrog cov peev txheej rau cov kws kho mob kho thiab tswj EB cov neeg mob. Thov tuaj xyuas peb EB kev txhawb nqa thiab kev pabcuam rau cov ntsiab lus cuam tshuam rau cov kws kho mob uas tsis yog kws kho mob.
Publications
Ntxiv rau DEBRA International's Cov Kev Qhia Ua Txhaum Cai, muaj ntau qhov kev pab ntxiv muaj rau cov kws tshaj lij tswj EB cov neeg mob.
- Cov txheej txheem phais
- Tes Splinting Cov Lus Qhia thiab Kev Ua Si rau Cov Me Nyuam nrog epidermolysis bullosa
- © Birmingham Children's Hospital NHS Trust, muaj nyob ntawm no los ntawm kev tso cai los ntawm Birmingham Children's Hospital Occupational Therapy team
- Birmingham Women's & Children's NHS Foundation Trust kuj tau tsim ntau yam nplooj ntawv thiab cov yeeb yaj duab qhia ntawv rau cov kws tshaj lij.
Yuav ua li cas xa mus rau EB Community Support Team
peb EB Pab Pawg Pabcuam Zej Zog ua haujlwm ze nrog cov kws kho mob thiab kws kho mob. Yog xav paub ntxiv txog cov txheej txheem xa mus no, thov nyeem tsab cai xa mus.
Thov kos peb txoj cai rau cov ntaub ntawv tshiab kawg.
IB-CLINET
IB-CLINET yog ib qho kev pib txhim kho kev kho mob rau cov neeg nrog EB los ntawm kev txhawb nqa kev sib koom tes ntawm cov kws kho mob ua haujlwm nrog EB.
Mental Health thiab Kab Mob Tsis tshua muaj
Kev Kho Mob 4 Kab Mob Tsis tshua muaj tau pib kawm online tshiab, 'Mental Health and Rare Disease', suav nrog 8 zaj lus qhia sib tham.
DISCLAIMER: DEBRA tsis tuaj yeem tuav lub luag haujlwm rau cov ntsiab lus ntawm cov chaw sab nraud.