Hla mus rau cov ntsiab lus

Cov kws kho mob

Raws li tus kws kho mob koj yuav tsis tau kho tus neeg mob nrog Epidermolysis bullosa (EB) thiab qhov xwm txheej tuaj yeem yog qhov tshiab rau koj vim nws qhov tsis tshua muaj. Txawm li cas los xij, cov ntaub ntawv thiab cov ntaub ntawv muaj los txhawb koj.

Nrhiav kom paub ntau ntxiv txog NHS commissioned EB kev pabcuam kev noj qab haus huv, thiab yuav tiv tauj lawv li cas; EB cov txheej txheem kev kho mob; EB cov peev txheej thiab kev cob qhia; thiab lub luag haujlwm uas DEBRA's EB Community Support Team ua si hauv kev txhawb nqa cov kws kho mob.  

Ib tug pej thuam ntawm Mary Seacole sawv zoo siab nyob rau hauv pem hauv ntej ntawm lub vaj huam sib luag loj bronze, teem nyob rau hauv ib cheeb tsam toj roob hauv pes nplua nuj nrog greenery.

NHS Specialist EB kho mob

Peb ua haujlwm nrog kev koom tes nrog NHS kom xa cov kev pabcuam kho mob EB txhim kho uas yog qhov tseem ceeb rau cov neeg nyob nrog EB.
Xav paub ntau ntxiv
Tus neeg uas muaj ntaub qhwv ob txhais ceg pw ntawm lub rooj kuaj mob, nrog hnab looj tes xiav thiab ib daim ntaub nyob ze.

EB Clinical Practice Guidelines

Nrhiav cov lus pom zoo rau EB kev kho mob raws li cov pov thawj tau txais los ntawm kev tshawb fawb txog kev kho mob thiab cov tswv yim kws tshaj lij.
nyeem ntxiv
Tus kws kho mob hauv lub tsho hauv chav kuaj tuav lub stethoscope, sawv hauv lub tsev kho mob ci ntsa iab nrog cov neeg ua haujlwm kho mob thiab cov neeg mob tom qab.

Cov peev txheej rau cov kws kho mob

Nrhiav kev pab rau cov kws kho mob thiab tswj EB kev saib xyuas neeg mob, suav nrog kev tshaj tawm thiab kev cob qhia.
Xav paub ntau ntxiv
Cov neeg tuaj saib mloog tus neeg hais lus nyob rau hauv pem hauv ntej ntawm lub vijtsam projection thaum muaj kev tshwm sim.

Kev cob qhia EB rau cov kws kho mob

DEBRA txhawb nqa ntau yam xwm txheej rau cov kws kho mob kom txhawb lawv txoj kev paub thiab kev txawj ntse hauv EB.
Nrhiav qhov xwm txheej
DEBRA Ambassador, Fazeel Irfan, muaj cov plaub hau luv luv thiab tsom iav, hnav lub teeb-xim lub tsho, zaum hauv lub rooj zaum teal ze ntawm lub qhov rais nrog ntsug qhov muag tsis pom, saib hauv qab thiab luag ntxhi me ntsis.

EB kev tswj tus neeg mob

Nrhiav cov ntaub ntawv tseem ceeb thiab cov lus qhia los tswj cov neeg mob nyob nrog EB.
Xav paub ntau ntxiv

Koj puas paub ...?

Yog tias koj yog ib tus kws kho mob (xws li cov neeg saib xyuas them nyiaj) tshwj xeeb hauv EB lossis ua haujlwm nrog EB cov neeg mob, koj tuaj yeem dhau los ua tus tswv cuab DEBRA UK. Kev ua tswv cuab yog pub dawb thiab muab rau koj nkag mus rau kev txhawb nqa, kev koom tes, thiab cov xwm txheej los txuas nrog lwm tus hauv zej zog EB.
Ua ib tug tswv cuab DEBRA
Logo ntawm DEBRA UK. Lub logo nta xiav npauj npaim icons thiab lub koom haum lub npe. Hauv qab, cov kab ntawv nyeem "Lub Npauj Npaim Skin Charity .
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Kev Tiv Thaiv Txoj Cai

Lub website no siv cov ncuav qab zib kom peb thiaj li muab tau rau koj nrog tus neeg siv tau zoo tshaj plaws. Cov lus qhia hauv qab zib yog cia rau hauv koj tus browser thiab ua haujlwm xws li lees paub koj thaum koj rov qab mus rau peb lub vev xaib thiab pab peb pawg neeg kom nkag siab txog cov chaw hauv lub website koj pom ntau yam ntxim nyiam thiab siv tau.