Kev tshawb fawb cuam tshuam
Peb cov ntawv tshaj tawm qhia txog qhov tshwm sim thiab qhov cuam tshuam ntawm kev tshawb fawb nyiaj txiag los ntawm DEBRA UK.
Los ntawm rub tawm koj tus kheej daim ntawv luam ntawm DEBRA UK Kev Tshawb Fawb Txog Kev Tshawb Fawb Txog Kev Tshawb Fawb 2021, koj tuaj yeem paub txog qhov cuam tshuam ntawm epidermolysis ntawm bullosa (EB) ntawm lub neej ntawm ntau txhiab tus menyuam yaus UK, txiv neej thiab poj niam raws li EB cov kws tshawb fawb siv zog nrhiav kev kho.
Nrhiav tau:
- Cov peev txheej ntawm cov neeg cuam tshuam los ntawm cov kab mob ntawm daim tawv nqaij no debilitating;
- Peb qhov kev pom zoo rau yav tom ntej tsis pub dawb los ntawm EB;
- Cov kws kho mob tshwj xeeb thiab cov kev pabcuam muaj rau cov neeg mob EB thiab tsev neeg;
- Kev cog lus rau kev tshawb fawb zoo sawv cev ntawm EB cov neeg mob thiab tsev neeg;
- Thiab ntau yam ntxiv.
