Peb cov haujlwm tshawb fawb EB
DEBRA UK yog qhov loj tshaj plaws UK pab nyiaj ntawm EB research, muab khoom plig rau cov kws tshawb fawb nrog cov kws tshaj lij hauv kev tshawb fawb thiab kev kho mob feem ntau cuam tshuam rau cov tsev neeg nyob nrog EB.
Peb cov ntaub ntawv tshawb fawb txog kev tshawb fawb suav nrog kev sim tshuaj, kev ua haujlwm hauv chaw kuaj mob, kev tshawb fawb txog noob caj noob ces thiab kev kho mob ntawm tes thiab tshuaj siv tshuaj kho dua tshiab, nrog rau cov haujlwm uas ua rau muaj kev hloov pauv hauv cov tsos mob rau kev kho mob thiab kho mob qog noj ntshav.
Cov kev tshawb fawb peb tau nyiaj yog cov hauv ntiaj teb, thiab qhov ntawd yog vim peb tsis yog nyiaj txiag UK cov kws tshawb fawb thiab kws kho mob tab sis qhov zoo tshaj plaws hauv ntiaj teb. Peb kuj tau cog lus los txhawb cov tiam tom ntej ntawm EB cov kws tshawb fawb raws li kev nqis peev hauv kev tshawb fawb EB yav tom ntej. Ntau qhov haujlwm peb tau txais kev sib koom ua ke kev paub thiab kev txawj los ntawm cov kws tshawb fawb ntawm ntau qhov chaw tshawb fawb hauv UK thiab thoob ntiaj teb.
