Hla mus rau cov ntsiab lus

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Peb qhov blog yog qhov chaw rau cov tswv cuab ntawm EB zej zog los qhia lawv cov kev paub dhau los ntawm EB. Txawm hais tias lawv muaj EB lawv tus kheej, saib xyuas ib tus neeg nyob nrog EB, lossis ua haujlwm hauv kev kho mob lossis kev tshawb fawb txog EB.

Cov kev xav thiab kev paub ntawm EB zej zog tau qhia thiab sib koom los ntawm lawv cov EB dab neeg blog tshaj tawm yog lawv tus kheej. Lawv tsis tas sawv cev rau cov kev xav ntawm DEBRA UK. DEBRA UK tsis muaj lub luag haujlwm rau cov kev xav tau qhia hauv EB dab neeg blog. Cov kev xav no yog los ntawm ib tus tswv cuab.

Qhia cov lim

Three people in blue DEBRA T-shirts walk on a park path holding hands and raising arms.

11th May 2026 by Rachael Stevens

Completing a 26-mile walking challenge for DEBRA UK

Paul Dimmock hnav ib lub tsho loj nthuav qhia kev tshawb fawb txog kev sib kis kab mob psoriasis thoob ntiaj teb rau ob tug poj niam nyob rau pem hauv ntej ntawm lub vijtsam digital uas muaj daim ntawv tshaj tawm txog kev tshawb fawb.

7th Plaub Hlis 2026 los ntawm Dr. Paul Dimmock

Thoob plaws ntiaj teb nrog EB

Tub hluas hnav tsom iav loj loj thiab lub tsho "Palm Springs" luag ntxhi sab nraum zoov; nws muaj ob daim plasters ntawm nws sab caj npab sab laug thiab ib lub dab teg ntsuab.

25th Peb Hlis 2026 los ntawm Jennifer Taylor

Nyob nrog EB: Zaj dab neeg ntawm Jennifer thiab William

Ob tug kws tshawb fawb hnav tsho tiv no thiab hnab looj tes sib tham hauv chav kuaj mob. Ib tug tuav lub tais petri, ob leeg hnav tsom iav, thiab lub tub yees uas muaj cov ntaub ntawv pom tseeb nyob tom qab.

20th Lub Ob Hlis 2026 los ntawm Cy Grove

Nees nkaum xyoo dhau los: peb tau mus deb npaum li cas hauv kev sib ntaus tawm tsam EB

Ib tug poj niam siv nws lub xov tooj thaij duab selfie hauv daim iav thaum ib tug ntxhais hluas sawv ntawm nws ib sab, ob leeg luag ntxhi.

19th Lub Ob Hlis 2026 los ntawm Katie Archer

Rov tsim kho dua tshiab los ntawm cov tshauv: DEBRA tau los ua peb txoj sia li cas

Ib tug poj niam uas muaj plaub hau dawb thaij duab selfie ntawm dej hiav txwv rau hnub ci, nrog nthwv dej thiab ntuj xiav ntshiab nyob tom qab.

9th Lub Ob Hlis 2026 los ntawm Emily White

Nyob nrog EB Simplex: Ib qho kev txiav txim siab tsis meej (thiab vim li cas kuv thiaj khuv xim tsis muaj ib qho ntawm lawv)

Prerna Kadam, hnav lub tsho dawb thiab hnab looj tes xim av, sawv hauv chav kuaj mob, saib lub koob yees duab.

2nd Ob Hlis 2026 by Prerna Kadam

Ua kom sai dua kev tshawb pom tshuaj rau mob qog noj ntshav hauv RDEB

Ib tug neeg hnav khaub ncaws zoo li Santa Claus zaum saum lub rooj zaum xim av nrog ib tug me nyuam mos thiab ib tug me nyuam yaus, thaum ib tug neeg laus—qhia zaj dab neeg EB ntawm niam—sawv tom qab lawv, luag ntxhi. Cov ntoo Christmas thiab cov khoom dai kom zoo nkauj ua rau keeb kwm yav dhau ci ntsa iab.

16th Lub Ib Hlis 2026 los ntawm Natalie Stonehouse

Zaj dab neeg EB ntawm ib leej niam

Catherine Silk, nrog cov plaub hau xim av daj ntev txog lub xub pwg nyom, hnav lub tsho dub tsis muaj tes tsho thiab ib txoj hlua caj dab, luag ntxhi thaum sawv hauv tsev.

23 lub Kaum Hlis 2025 los ntawm Catherine Silk

Cov txiaj ntsig ntawm kuv txoj kev tshawb fawb: cov txiaj ntsig thiab lub nra hnyav ntawm cov tshuaj EB