Peb yog DEBRA
Peb yog lub koom haum pab neeg mob rau cov neeg cuam tshuam los ntawm epidermolysis bullosa (EB) - npauj npaim daim tawv nqaij. Peb kuj yog ib qho ntawm cov peev txheej loj tshaj plaws ntawm kev tshawb fawb txog EB kev kho mob thiab kev kho mob.
Ua tus tswv cuab
Kev ua tswv cuab yog pub dawb thiab qhib rau txhua tus neeg nyob nrog EB lossis txhawb nqa ib tus neeg nrog EB: cov niam txiv, cov neeg saib xyuas, tsev neeg, cov kws kho mob thiab cov kws tshawb fawb. Ua ib tug tswv cuab, koj tuaj yeem nkag mus rau cov tswv yim, kev xav, thiab kev txhawb nqa nyiaj txiag, ntxiv rau cov hauv kev sib txuas nrog lwm tus hauv EB zej zog.
Peb lub khw muag khoom siab dawb
Los ntawm kev mus yuav khoom hauv DEBRA cov khw muag khoom siab dawb, koj pab cov neeg nyob nrog EB, nrog rau kev ua tau zoo rau koj lub hnab nyiaj thiab peb lub ntiaj teb.
Hmo ntuj nrog Graeme Souness, Sir Alex Ferguson thiab cov phooj ywg ncaws pob
Koom nrog peb rau hmo tsis nco qab txog kev ncaws pob lus dab neeg thiab nrhiav nyiaj txiag ntawm qhov kev tshwm sim tshwj xeeb rau cov kiv cua football.
Koom Team EB
Peb xav tau koj los koom nrog cov hnub qub zoo li Scott Brown thiab Emma Dodds. Xaiv koj qhov kev sib tw, sau npe, nrhiav koj tus neeg txhawb nqa, thiab ua qhov txawv rau EB.
